Saturday, March 24, 2012
Hello. I am excited to share this with you. I wish it was more like how Meaghan's health improving. Today I took Meaghan to Target to spend a gift card she received while we were in the hospital. She is part of a research project for CF Related Liver Disease and each visit they give her a card for her time. The study will follow her over five years and after these initial visits she'll only be seen once a year. Today was a day she's been looking forward to for weeks. She didn't waste any time making her selection. I have no idea what this thing is. It sings and talks and supposedly if you "nurture" it well it's singing improves. All evening she played with it but I never picked up on any changes. The short trip to the store completely wore her out. She took a little nap during the car ride home. It is hard for me to remember sometimes how sick she is. I watch her play and she seems restless at home so I wanted to give her a change of scenery. I thought she was ready. I want her to be better as quickly as she became sick. I've never been patient. I don't know if I can do this. Thanks to many of you, you make me think I can. Just keep telling me that I can do this and that Meaghan will be alright. I accept she may not be exactly like she was before, I hate it, but I have to accept it. One more thing, please share Meaghan's story. We need to spread the word about cystic fibrosis and support the Cystic Fibrosis Foundation in its search for a cure. Much love for all of you, you mean the world to us.
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