These are a few of the places Meaghan's images from last year have been used. |
Today was Meaghan's photo shoot at the National HQ for the Cystic Fibrosis Foundation in Bethesda. It was terrific. Everyone there was wonderful to Meaghan. I saw a few of the shots they took of Meaghan before they took some of the two of us together, she looks amazing! The highlight for me was the opportunity for Meaghan to meet Dr. Beall, President and CEO of the CFF. I have heard him speak and read his emails but getting to shake his hand and see the pure joy on his face when he shared the progress that's being made to "cure" CF, was a moment I won't forget. Not to mention the hug he gave me when I told him Meaghan is a double DeltaF508. Every day new and promising information is released by the pharmaceutical companies and researchers heading up the study of the combination of drugs that have the potential to improve my daughters life. Real hope for a long, healthy future is almost at our finger tips. Many CFers are benefiting from the use of Kalydeco, the first CF drug that targets the root of the disease. Many more, including Meaghan, stand to benefit from Kalydeco when used in combination with drugs that are being tested right now. HERE I GO... Please donate. The Foundation needs your help, I need your help, MEAGHAN NEEDS YOUR HELP!
Awesome! The pictures look fantastic! Please share more when you get them! That is neat that you got to meet with the Pres of CFF! Very cool! Talk to you soon!
ReplyDeleteTracey
Fabulous! How exciting to meet the CEO of CFF. Please keep sharing pictures as you get them. I'm glad things are going a bit better. Much love, Janet
ReplyDelete