Her shirt says, "This is what fabulous looks like".
I couldn't agree more!

Not much to report on today.  I spent most of the day with Meaghan and Jonathan at the aquarium.  It was fantastic, we even saw some friends on our way in (Hi C).  I wanted to beat the summer crowds and I ended up with at least three class trips instead.  Oh well, they were spread out and Meaghan and Jonathan had plenty of opportunity to see everything.  They just LOVE going, that membership was the best money we spent the way I see it.  I am pinching myself over how well the day went for me.  My favorite thing was hearing Meaghan say over and over again how beautiful the jellyfish were.  I have to agree, there's something very enchanting about the jellies :)

I have to schedule another visit at Hopkins for Meaghan, just another "routine" visit.  She's due right before or after family vacation.  I know I should take her before vacation but have reservations over doing it then obviously.  Even when it sounds easy, it just isn't.  

I hope that this blog is catching on with people, I think it is.  I want the word out there about CF and how important it is to support families like mine.  The comment I get most of the time is that no one knew, Meaghan looks so healthy.  Yes, she does but hours a day go into it.  My daughter has to keep a tight schedule of medicine, therapies and supplements.  With her improving so well I sometimes want to pass on treatments to have more fun.  I try very hard to remember that I am Meaghan's first teacher when it come to caring for herself  and so we make it all fit somehow.  I am very proud of the person I see when I look into those pretty blue eyes.  Through her fighters spirit, strength and courage I find what I need to go another day.  Together, we will beat this...