A packet of Get Well Wishes from church

I don't know where to start.  I am sorry that I have left the blog for the past few days.  I really thought that Meaghan and I would come home and just get back to the business of "normal" living.  I felt so different coming home this time (like I was ready), Meaghan was acting like she felt better.  But I felt it (panic) as soon as we opened the van doors in the garage.  Everything was happening too fast.  The home care nurse met us in our living room at around 3pm.  She is a familiar face.  This is the nurse who had the pleasure of changing the PICC dressing in our house when Meaghan peed on me.  I don't think she was happy about being assigned to us again.  That visit took almost two hours.  It was too long.  We had to go over Meaghan's recent health and hospital stay, her extensive med list and administer the first antibiotic.  My mother-in-law planned a dinner for my family so I didn't have to worry about that.  That was the highlight of my day.  A real, delicious, home cooked (mom's) lasagna.  Unfortunately for me, I suddenly realized that I had hooked the wrong medicine to Meaghan.  I hope that I mentioned already that we have to be doing TWO IV antibiotics at home.  I had already done one with the nurse and should have been able to do the second all by my self.  I ran from the table in a complete tizzy.  After I called the 24hr number I knew I needed someone to talk me down.  I called a cousin who had all the knowledge necessary.  It worked and now I have the number to Poison Control on the refrigerator.  A very nice nurse called me back and told me that I had to stop beating myself up, I was not the first person to make this mistake and I would probably not be the last, just that night even.  It was hard to do anything or even sleep the first night home.  Tuesday wasn't a lot better.  It started out well, I had an offer to get Jimmy to the bus stop nice and dry during the rain.  Then I had to get to the business of finding out where Meaghan's new physical therapy machine was.  During our stay I was informed that ours was unsafe.  I was also told that it was being handled for me.  NOT.  Now it's done, what a pain.  Wednesday Meaghan and I met with the home care nurse for the second dressing change.  This nurse was also there when Meaghan peed on me.  That was her first home nursing care experience.  She teased today that she almost changed paths because of that experience.  She and I had high hopes for a successful change today.  We were successful, it was ugly, but it was done.  We have another change ordered for Tuesday then a visit in the CF clinic on Wednesday.  I haven't heard any more about lab results and I don't know for sure how long we have to keep the PICC line and use this course of antibiotics.  There are a lot of you asking how you can help.  I really want to ask for help and visits but for Meaghan, right now we have to lay low.  I love each and every one of you, I couldn't make it through my days without the gentle reminders.  Admittedly, I am overwhelmed, but Jason and his parents are doing everything they can to help get me through this.

It's not a great picture but this is the PICC line.
It is hooked up to one of the abx.  The pink purse
is holding the medicine, pinned to her shirt.  We do this 4 times a day.
That is equal to 2.5 hours.