Way to Go!

The Great Strides Walk was a huge success.  I have not heard final walk day results from the MD Chapter, but overheard that we were already near our goal!  That is great news, however, our fight is not over.  The CFF needs our continued support in its lifesaving mission.  Meaghan needs our support!

Last Tuesday we took the kids to the Catoctin Wildlife Preserve and Zoo in Thurmont, MD.  It was a totally amazing day.  One that Meaghan has been waiting for for a long time.  And I am certain she will never forget.  Check back soon, I hope to add a slide show of our trip to the blog, we captured some unique experiences.  

Meaghan is battling a new infection.  We were dealt the news over the phone a week ago.  The oral antibiotic is the easy part of what she has to add to her daily routine.  The inhaled antibiotic on the other hand is tearing her apart.  It has to be taken by nebulizer twice a day and it takes 30 minutes to complete each dose.  Throughout her life she has complained very little about anything but she says this medicine burns her mouth.  Even though this is hard on her she remains diligent in her treatment proving once again she has what it takes to beat this "bug".