Saturday, August 18, 2012

Today Meaghan flew a kite.
I know it"s been a long time since I shared anything with you.  I haven't had much.  Meaghan is still taking the "extra" antibiotics and we won't know for about three weeks if they are doing the job.

We are trying to cram as much summer into our last days before school as possible.  I am actually a little sad that our long days together are coming to an end.  On Tuesday Jason and I are taking Jimmy and a friend to see two Little League World Series games.  Meaghan and Jonathan are going to stay home with Meemaw and Pop Pop.  There's something special planned for everyone.  Then taking advantage of the holidays  early in the school year, Jay and I are taking the kids on one more family trip.  Having Meaghan so sick this winter was a bit of a wake up call for us.  Until then our CF journey was relatively easy.  No more denial, tomorrow is going to be a "special" day.


This is Meaghan's first pumpkin from our
 garden, a sign of things to come I guess :)
I am (for good reason) nervous about sending Meaghan back to school this year.  I love the preschool that we send her to, it has nothing to do with them.  This year we have the benefit of an "experienced" teacher.  One who has had two other children go through her classroom with CF.  This teacher is a family friend and I know both the other families.  My comfort level with the school and the teachers is as good as any mother could hope for.

I wish I could put into words how battling Meaghan's CF makes me crazy.  I put lots of words on these pages and some who follow are experiencing/will experience/have experienced the same feelings.  Others are doing what they can to support us through this dizzying ride.  All I know I want to say is every day is a miracle.  I fight like mad to put aside the fear, stress, sadness, guilt and worry so that I can get out of bed, hug my beautiful girl and thank God we're here, together.

Here's my advice to you tonight.  Take a moment, now, to tell the ones you love that you love them.  Do something with your kids.
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3 comments:

  1. JanetAugust 19, 2012 at 8:44 AM

    I'm glad to hear that you are enjoying the last few days of summer. I'm doing the same here. I hope you have a blast at the baseball games.
    I'm glad to hear that Meaghan's teacher has had experience with other CF students. That must be a comfort. :)
    My dear sister - you have absolutely NOTHING to feel guilty for. You are a fabulous mom to not only your little girl, yet your two boys too. I'm sure I speak for many of us reading this blog. We are in awe of your strength and dedication to all of your children. You are an amazing mom. Please continue to let us know how we can support you. Much love - Janet

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  2. F1 fanAugust 19, 2012 at 6:33 PM

    I have to agree with Janet! You should never feel guilty! You are an awesome mother to her and your boys, not to mention a super wife too! Given all the additional stresses you have to deal with on top of the "typical" mom stresses, you are doing exceptional! Your husband and kids are lucky to have you!

    I'm glad you are all enjoying summer together! It is great to hear of your fun adventures and I'm excited to hear about the others you have planned!

    Remember that we are praying for you guys and have many friends praying as well!

    Love you!
    Tracey

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  3. F1 fanAugust 19, 2012 at 6:35 PM

    Oh, meant to say - I LOVE the picture of Meaghan with the pumpkin! How cute! Her hair is getting long again. She looks so much like her beautiful mom too!

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