Thursday, July 26, 2012

Guess What Meaghan Said To Me Today

I kind of fell off the count down.  It's been a stressful week.  This post is to catch you up, fair warning, it's a tough one.  The story I am going to tell is why I do everything I do.  It explains it all.


(Back story)
This week we've talked a lot about CF.  The weeks schedule went like this:
Monday- Meaghan had a check up at Hopkins with her pulmonologist.  Jimmy came along.  It looks like a new or maybe even the "old" infection are working on Meaghan now.  We're waiting for culture results.  While we wait we had to start an antibiotic to halt any progression of infection.  Another bronc is in Meaghan's future, maybe sooner than later. 
Tuesday- I saw an email from NASA about the death of Sally Ride.  I read the short bit to Jimmy including that she died after being sick.  Jimmy remembered a little about who she was and we mostly talked about that.  I didn't give it another thought, Meaghan and Jonathan weren't part of the conversation.  
Wednesday- All three kids had a routine visit at the dentist.  I of course had to update Meaghan's medical history which had everyone asking a lot of questions.  I needed to attach an extra page to her record just to include all the medications she is currently taking.  Her oral health has not suffered to date from the many medicines running through her tiny body.
Thursday- Jimmy had his 10 year Well Child visit- the little kids went along too.  Jimmy is in great health but he needed his tetanus booster.  I warned him this might happen and he handled the shot very well.

So, today in the van, the kids were asking why we go to the doctor and get needles.  My answer is always the same, "We get needles when we see the doctor sometimes because they are trying to keep us from getting sick."  I was trying to hear what was on the radio and tune out the chatter in the back seats when this cut through me like a knife, "It's a good thing I didn't die when I got so sick".  It was Meaghan and she said it twice.  Jonathan said, "Oh yeah! We don't want you to die, we love you."  Meaghan replied, "Awww, you're so sweet!"  

I don't know how I kept driving.  Thank God for Jonathan, I didn't have to say anything, I cried and prayed that topic would be put behind us as quickly as it came up.  It did.  I wrote it all on scratch paper to share with Jason when he got home.  I am constantly blown away by how much Meaghan connects with life.  No one wants Meaghan to have to face the things we have to face in a life with CF.  She just does, in a matter of fact, 4 year old way.  I love my daughter, she gives me so many reasons to be proud.  

2 comments:

  1. I'm sorry I haven't been able to talk to you recently. We've been away on "vacation" visiting family in remote areas of Indiana so we've have spotty cell or internet access. I feel bad not knowing what was going on with you guys. I've been looking for updates! I will continue to pray for you, Meaghan and your family! The big walk is very soon! I pray the weather cools off a bit for you guys! Love and miss you! Tracey

    ReplyDelete
  2. It also shows the great job you're doing as a mom.

    ReplyDelete