Tuesday, May 8, 2012
Hello All,
I have so much to tell you about, I have to keep it brief though. Meaghan's first day back to school was great. She was a little nervous and shy at first but settled right in by circle time. Her reappearance in class was exciting for everyone. I know she is looking forward to going back tomorrow.
In addition to all that good news I got several emails today that really helped to lift me up. First, May is Cystic Fibrosis Awareness Month. There are many ways to share and support and I hope that you might find a few of your own. The best news for the day was the article printed in the Financial Times and the New York Times about Vertex. Vertex is the company doing a lot of the work developing the drugs that go straight to the root of the defect in CF. The article states that patients with Meaghan's specific genome who received the experimental treatments "improvement in lung function far exceeded expectations". This is remarkable news. This couldn't have come at a better time. Like Meaghan's recovery from this infection, more work is ahead for all of us. We are headed in the right direction, help keep the progress moving forward. Support Meaghan thought donations to the Cystic Fibrosis Foundation. Click the link on the right.
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I am so glad to hear that Meaghan had a good day back at school and that everyone was so excited to see her. Thanks, too for sharing the news about the new breakthroughs. That is exciting.
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