Hello again,

What a week.  School's out for Meaghan and daddy had some extra time with us the end of the week.  We went to the bowling alley Thursday.  Meaghan and Jonathan LOVE to bowl and the lanes are perfect for them.  Now for the holiday weekend, lots of baseball.  We were at the field from 9:30am to 5pm!  It was hot but we had shade and plenty of cool stuff to drink.  Meaghan had lots of fun playing with her friends again.  Tomorrow is another baseball day, same tournament but a new location.  I have heard that Jimmy is the starting pitcher for tomorrows first game, I don't think I'll sleep well tonight.

Meaghan continues to show that she is getting better.  Mostly I see it in her appetite and stamina.  A few months ago I couldn't imagine being out anywhere with her and look at her now.  She is still taking 3 antibiotics and has to put a stronger emphasis on her therapy and that is how life will be for many months to come.  I have to remind everyone because Meaghan is so much more than what you see on the outside.  Her beautiful face and enchanting smile distract you from her CF.  Before this infection life was different for us but now...  We need a cure.  Daily, Meaghan swallows up to 27 pills, 3 chewables, 4 liquids and uses 16 ounces of a high calorie formula just to survive.  She's 4 years old, her summer should be filled with fun, not therapies and lectures about germs and bad air quality.

Help us make CF stand for Cure Found!