Something else is on my mind. I haven't fully digested it so I don't know what to say. Today the nurse called from CF clinic. Meaghan's pseudomonas is back. The order for the new inhaled therapy is in, it may take a few days to get to the house. She'll take the antibiotic for 30 days, be off for 14 days then be tested once again to see if it is there still. We weren't even clear of it for a month! WHY????? There must be some way to prevent this bug from getting back into our kids. Our future looks like a constant 30 days on 30 days off of one or another inhaled antibiotic. I have so much frustration, hurt, anger, fear and deep sadness I can barely finish a thought. God, please help me. I want to know what to do. I want to make it all go away. Just when I start feeling strong, I lose my breath again. I know Meaghan is strong, I know she will fight. I'll be there beside her every step. Meaghan's health has been good in the past, she does well with the changes we constantly make to her routine. We have the best doctors and hospital working to make her better. But right here, right now, I'm drowning. God, heal my little girl, please, take the pseudomonas away. Clear her lungs. Please.
We need a cure to cystic fibrosis. Scientists are working hard and a cure is on the horizon. Whenever you can, as much as you can, support the Cystic Fibrosis Foundation. They are Meaghan and so many other amazing peoples HOPE for a longer, healthier future. The link to my Great Strides Page is on the right.
God Bless!!
Michelle,
ReplyDeleteI've had to process this all day. I can't imagine how you are feeling. You think you have it beat then it is right back there. So frustrating. We pray for your strength as I know you bear so much of this on your own shoulders. I pray that God will lift all of the feelings of "should have" and "could have" and that he will give you peace in knowing that you have done and will continue to do all that you humanly can. Also, we pray that you will give it entirely to Him and put it in His control. Yes, we need to do all we can to help (financially, emotionally, physically, and supporting in any way we can) but ultimately, He is the one that will hold her in His hands. We pray that those working on the cure will have the knowledge and guidance needed to find the cure. We love you and you know we would do anything for you. Please let us know if there is anything! Miss you lots!
Love,
Tracey
PS - The princess is beautiful but I think Meaghan is more beautiful that her!
I am so sorry to hear about the pseudomonas return. I cannot imagine how frustrated you must feel. You are always in the palm of God's hand so remember the Footprints poem that says where there are only one set of footprints is where God has carried you. I wish there was something I could do from here, however God can do much more than I can. Please let me know if you think of anything I can do. I love you and the whole family tons. - Janet
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