Hello All.  No excuses, a month has gone by and no word from us, I am sorry.  There have been no changes in our status so it hasn't felt right to write.  We've been taking advantage of the warmer weather and the sunshine, just trying to make every moment memorable.

Meaghan finished her first (new) 28 day cycle of Cayston.  The nebulized antibiotic to treat the pseudomonas infection she has been battling since July 2012!  There are kids with CF who have pseudomonas infections for years and live full vigorous lives.  Pray with us that Meaghan eradicate the infection.  For now Meaghan continues to live to her life as if there are no complications.  She is a vibrant and happy girl.

Just to put some things in perspective for you, try this.  I read that breathing with CF is like holding your nose and breathing through a drinking straw.  Do this for 60 seconds.  Imagine having to do that all day, every day.  Meaghan can not choose to let go and breathe freely.

The CFF is working diligently to make the constant battles against lung infections a thing of the past.  Visit their website to read about the amazing progress being made in the treatment of CF at: www.cff.org then choose to support Meaghan by visiting one of our sites to donate.  Either to Great Strides or the Xtreme Hike, they are both CFF events Jason and I participate in, with a reputation of committing over 90 cents of every dollar donated to research and development of a cure.  

Xtreme Hike: www.cff.org/LWC/MichelleJaecksch
Great Strides: www.cff.org/Great_Strides/MichelleJaecksch

With love and hugs for all!