Monday, September 22, 2014

Countdown to Xtreme Hike
5 days!!!

Hello All.  I really wanted to update you before now, you know...  

Meaghan finished her 14 day antibiotic last Thursday, thank goodness.  She did very well with taking it and tolerating the side effects.  Me too :-)  She seems to be feeling well.  Her mood is good, she is eating well, really well and she sounds mostly clear again.  When I said that Meaghan is eating very well, you have to understand that Meaghan has been growing as well as she has been because of her G-tube.  If it weren't for us pumping one thousand calories (sometimes more) into her little belly every night she would have shrivelled up long ago.  No one can thrive on carrot sticks and fruit.  The occasional egg white and spaghetti were exciting but still not enough.  These days she's a completely different child.  She takes a snack to school that ranges from 300-400 calories and a lunch that's 400-500 calories.  She still eats an afterschool snack of almost 200 calories and then she has her usual, picky dinner with the family.  I don't know why I put it all into calorie count for you but the numbers seemed easier to type than the list of foods she will eat now.  Boy how the list of foods she'll eat has changed.  She is much more open to new foods.  I bet I forgot to tell you that she asked to try crabs, clams, muscles and pickles this summer.  There are other, less surprising food items on the list but those are real shockers for me.  Anyway, it is a relief that while we still need the feeding tube and will probably always have it, for now at least, Meaghan likes eating at last.  

I am really excited about life inside our home these days as well.  There is so much joy and togetherness and sharing.  We are celebrating family and making the most of every day.  Looking forward to things.  Some in the distant future and some much sooner than that.  One thing that has us all excited and I'm not sure if sharing is the best idea but oh well, here goes.  We are going to get a puppy.  There is a litter of Vizsla puppies on the way and we are on the list.  Our last dog, Hammer, left us 4 years ago.  We all loved him and have missed him terribly but now we are ready.  Every day Meaghan asks if the puppy is here yet.  Of course I have told her that they haven't even been born but to a 6 year old who knows what she wants the waiting is pure agony.  I love it, it is so sweet how much we love this puppy who we haven't even seen yet.  The best part is, Meaghan actually asked her pulmonologist if she could even have a dog before we made up our mind to get one.  She was very worried that he would say, "NO." because of her CF.  Much to her surprise he said yes.  He went on to make her the happiest little girl in the world when he said it would even be ok for her to get a few puppy kisses too.  Now we just have to be patient.  It could be February before we can bring our new little guy or girl home but I will keep you in the loop ;-)     

Lastly, in Xtreme Hike news, a few weeks ago, on a 16 mile training hike, I strained a muscle in my right knee.  Honestly, I don't even know how I did it, it just started hurting and then the pain got really bad.  I knew I was injured but put the doctor off for about 4 days.  Then things got scary, fast.  I woke up with a lot of swelling in my whole right leg.  My doctor was afraid that I had a blood clot and rushed me off for a doppler study and MRI.  Thankfully, no blood clot and no significant or permanent ligament or tendon damage.  Her advice, lots of rest and NO EXERCISE.  HA, that's just not going to happen.  I did not exercise or hike for 2 weeks, that was all I could manage.  I went on a quick 10 mile hike on Saturday and I feel like it went well.  The terrain was much smoother than what I'll face in 5 days but I did it.  Because, I CAN.  I am going to admit that I am nervous but mostly because I wanted so badly to beat my pace from last year by a lot and now I don't think I will.  I will finish, that I am sure of. 

Okay, that's all for now.     

1 comment:

  1. Sounds great! Except for the knee thing! We'll be praying for you on Saturday! Wish I could be hiking that with you! You amaze me and I'm very proud of you!

    I'm glad Meaghan is spreading her wings a bit on food! Hopefully she continues to be brave and try them. I know she doesn't care for so much but trying is the first step!

    I'm also excited to hear that Meaghan is feeling better and sounding better! Yay!

    Keep up the great job and the great attitude! Love and miss you!
    Tracey

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