Today is the best day!

Our new mantra.  Jason says he's going to tattoo that on himself for Meaghan.  I decided I want a bracelet that says, "Every day, one breath at a time".  Thank goodness the kids know no better but the past few days have been emotionally hard on Jay and I.  Stories of less fortunate outcomes swirl all around us and bad thoughts are creeping in.  We're talking it all out and  staying as positive as we can.

Meaghan seems much more tired than usual.  Her appetite is good still so I'm trying not to worry (too much).  Her mood is just ok.  She is acting very shy and her only explanation is that she feels tired.  I have no good reason to call her doctors, especially since she will be at Hopkins on Wednesday.

That's it.  On the outside, we all look great.  We smile, laugh, hug and kiss each other.  On the inside, biology is tearing my precious little girl apart.  Fighting this terrible disease is is really all about what's on the inside.

When I get this down, I pray.  I remind myself of my blessings.  And by the end I come around to this: what CF has taken from me it has given back to me ten fold.